Friday, October 15, 2010

Apologizing for Accepting Your Child, Quirks and All, Why?


The latest post on The Thinking Person’s Guide to Autism has left me well…thinking. The author has written some insightful and deeply felt thoughts about her son’s autism. One of the topics she mentions is that she accepts him for who he is, all quirks and idiosyncrasies included.  The truth is I have been saying the same thing about the boys for some time. They are who they are. There comes a time when you have to just accept who your children are and how they are going to be. Quite frankly I think this is totally in line and not in contradiction with having the right to define yourself. (Read this post and you will understand the differences I am alluding to.)

Here is the kicker from this morning’s revelation. As I said I have been saying for some time now that collegeman and HSB are who they are. They have their foibles and their issues to work on. They have their challenges and their gifts. They also have their quirks and idiosyncrasies. Now everything put together in one basket, knowing HSB it has to be a video game adorned basket and for collegeman it has to be a human rights adorned basket, makes them who they are. They are unique individuals as is every one of the over 6 billion persons on planet Earth.

The interesting thing about this topic that I have noticed is that we tend to get defensive about these revelations. That at times its almost as if parents of autistic children are apologizing for recognizing who their children happen to be. I have never met the parent of a neurotypical child who feels the need to apologize for whom their child happens to be or make a big show of it either. Yes, you will find a moron parent who apologizes to the world because their offspring did not attend an ivy league college, but that is not the majority of people, just a lot of parents near where I live. Yes, that is a post for another day, or not depending on whether anyone cares about the elitist pole up your butt people that inhabit certain areas of the country.

The parents of neurotypical children tend to just accept life as it happens. They know that their children will become adults and that eventually they will go their own way. That their personalities are who they are and that they have shaped, or not shaped, the character of their children. They just expect this to happen. They know that their children will lead a certain type of life in a certain type of way. They expect certain age-related issues and they expect the rhythm of their children’s lives to be very similar to what had come before for generations, only with a lot more technology. So when one of these parents say, “Johnny, is so and so,” no one person bats an eye. They don’t’ apologize for it. It is just a normal part of their lives.

But for some reason we as parents of autistic children need to apologize for accepting our children for who they are. I don’t know why that is. Is it because our children are so different? Their quirks have them stand out in a crowd? So what? It is their quirks that make them who they are. It is their quirks that give them the personalities that we love. If they were child prodigies that would make them stand out in a crowd, but I have never seen any of those parents apologize for who their children happen to be. In fact their children’s idiosyncrasies are celebrated (also have you ever heard of a prodigy that didn’t have some kind of quirk. I mean look at Taylor Swift. You can’t tell me that that beautiful brilliant young woman doesn’t have some quirks somewhere, you can't be that talented and not be different.)


I don’t really know why we as parents of autistic children need to tell everyone how we accept our children for who they are, when neurotypicals never have to voice that at all. Is it insecurity on our part? Are we afraid that by accepting them we won’t push them properly and miss out on a therapy that could make their lives easier? Do we need reassurance  that by accepting our children it doesn’t mean we have given up helping our children, but it means just the opposite. Not sure where the insecurity comes from and why in fact it is there. Are we just still scared all the time for our children? Afraid that one misstep we take will doom them and take from them the life we are trying to help them create for themselves?

Until this post I had never told anyone that I realized that collegeman and HSB are who they are quirks, idiosyncrasies and all, except for my mother. Never really thought it was relevant to people’s understanding of how I deal with them and why we do what we do at times for them and the standards we hold them to. But now I see that it is very relevant. I know many people think that I spend all my time trying to change who they are, which is not true at all. I spend my time trying to help them be all that they can be (yes like the Marines).  I am just not sure why we parents of autistic children feel the need to apologize for it in some way.  I have to admit I find it rather odd for you see my boys are my heroes.





Until next time,


Elise

9 comments:

  1. Hi! I'm following you now from the Special Needs Blog Hop. Looking forward to getting to know everybody. :)

    I'm at http://yeahgoodtimes.blogspot.com or http://www.twitter.com/jillsmo

    <3

    Jill

    ReplyDelete
  2. accepting a child with a diagnonis can give a parent direction to seek whatever their child may need to deal with daily life. some parents may deny a diagnonis out of fear, frustration, and in doing so the child and the parent miss out in having help/resources . rose

    ReplyDelete
  3. Interesting topic - it is definitely strange that parents would apologize for that. I never thought of it that way before, but I know what you mean.

    ReplyDelete
  4. Great 'thinking' post for sure. I feel the same way and find it frustrating when people do apologize or make explainations... esp. right in front of their or our children & young adults. How do they think that makes them feel?? I know it hurts my son terribly!! Esp. as he gets old and is much more aware of how people view him. Heartbreaking for me to see that... anyway, thank you for writing about this. I hope everyone who reads it will understand & learn something!!!

    Rose, that is so very true! I have been rediculed, etc. for getting my son a diagnosis. Can you believe that?? I did because I wanted to get him all the help he needs and deserves! & Yes, it gave me some answers, understanding and even some peace knowing. However, some parents refuse a diagnosis referring to it as a 'label' and good parents don't 'label' their children. It upsets me so much when I meet someone with that attitude and gives me that look of pitty or something. Grrr...

    Thank you again, Elise for sharing all your knowledge, compassion and Understanding with us!!! I so appreciate all that you do. But Esp. for your fearlessly advocating for our boys!!

    Love you, Elise!!
    ~ Coreen

    ReplyDelete
  5. Hi, stopping by via the Special Needs blog hop. I'm following now and would love for you to add your blog to my Aspie/Autism blog roll on Sueberry Lane.

    (my 8yr old son has Asperger's)

    Becky,
    http:www.sueberrylane.info

    ReplyDelete
  6. I agree. :) I'm not apologetic at all. In fact, on my 'who is this person who wrote this blog' page, I end it with saying "We are not who we are in spite of our special needs or because of our special needs. We are who are, period. After all, “Disability is just an 'ability' in 'dis'guise!” My son's quote at 7 years old."

    I am on the spectrum, I don't apologize for who I am. I apologize when I screw up though..LOL Beautifully written! Acceptance is key. :)
    PS. I'm from the blog hop. :)

    ReplyDelete
  7. Welcome all. I do love a good blog-hop.

    ReplyDelete
  8. I have found that I usually get defensive and apologetic when I am in public and I interact with people that have no idea what autism is. I don't know if it is the way they look at my child or their comments, but I struggle when others don't accept my child for who he is. This is likely one reason why I become apologetic for my autistic son. Your post will help remind me to not get defensive in these situations though.

    I wrote a post dealing with this struggle a while back. It can be found at http://www.coconutmilkyogurtvsautism.com/2010/08/what-my-autistic-son-has-taught-me.html

    ReplyDelete
  9. Hi Coconut Milk- I would not necessarily say explaining to people about your son is apologizing. I would call it educating and quite frankly being very protective because the world doesn't understand your son as yet. I know it is a fine line we travel at times.

    ReplyDelete

Any comments that are racist, anti-Semitic, misogynistic or insulting diatribes will not be published. This blog is for grown-ups. Comments using four-letter words or questioning someone else's intelligence will not be published. If you wish to add something worthwhile to the discussion that would be appreciated. If you are still confused read the caveat section.